A voice for the voiceless: a critical analysis of research into persons with dementia and decision-making

Mackenzie, Fiona Eileen (2016) A voice for the voiceless: a critical analysis of research into persons with dementia and decision-making. MSc dissertation, University of Portsmouth.

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    This dissertation is a critical analysis of primary research exploring concepts of choice and involvement in decision-making for persons living with dementia and Alzheimer's disease. Person-centred care is embedded in legislation such as The Health and Social Care Act 2012 and The Care Act 2014. It emphasises knowing the person living with dementia's individual values and preferences. The Mental Capacity Act 2005 places a duty on professionals to support persons living with dementia to be involved in decision-making, from the assumption of capacity. To determine if these principles were evidenced this review explored whether the voices of persons living with dementia are actually heard in research, and involved in decision-making. An extensive literature review was completed then analysed using analytical frameworks. Emerging themes were identified then discussed. These were: 'Listening and Speaking: Time and Space', 'Identity and Personhood', and 'Participation: Research and Decision-Making'. Recommendations based from the findings emphasises the importance of family carers having open communication and highlights the need for training regarding capacity and supporting a person living with dementia to make decisions. Personal life stories can be a useful tool for not only reminiscence work, but ensuring carers know the person rather than the diagnosis.

    Item Type: Dissertation
    Departments/Research Groups: Faculty of Science > School of Health Sciences and Social Work
    Depositing User: Beth Atkins
    Date Deposited: 05 Aug 2016 15:18
    Last Modified: 05 Aug 2016 15:18
    URI: http://eprints.port.ac.uk/id/eprint/21363

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